Privacy Protection in Human Subjects Research





This short course aims to teach basic privacy awareness and privacy protection skills to participants. It discusses aspects of research or certain types of research (like surveys, interviews, focus group discussions, participant observation, clinical trial, archival research, chart reviews, database searches, electronic record search) requiring privacy protection. Safeguards against unauthorized use or disclosure of personal or sensitive information will be demonstrated.

Topics include: privacy protection plan, privacy impact assessment, data protection officer, privacy and security techniques, privacy in research design and conduct, data and record management, data storage and disposal, privacy breach and reporting requirements, coding techniques, encryption, backup, archival, data sharing, open data.

Intended workshop participants include researchers, journalists, civil society workers, academics.